Friday, January 06, 2023

Locking horns with Dementia : Purpose above Process



There’s not an ounce of doubt about the crucial role of technology in providing a wide range of utilitarian health care solutions. In the context of dementia, more specifically Alzheimer’s, we now have a plethora of tech-enabled solutions to help our elderly cope with the emergent challenges of this largely progressive disorder - from assistive calendars, touch lamps, voice prompts to medication aids, remote monitoring systems and tracking devices to brain boosting apps and wireless brain implants. But this copious supply-side push, knowingly and unknowingly, has kept the process above the purpose.

Ahead of ground-breaking research, we need a common sense approach focused on care – often more palliative than curative – to help patients restore their dignity, not just function. As much for a happy today as for a better tomorrow. This tight rope walk can’t be traversed at the cognitive level.

Devoid of purpose, life tends to become meaningless. The onus is on us to find and attach meaning to it. Since the medical curriculum is not specifically designed to address the patient’s psychological needs, practitioners tend to suppress emotion in the focal attention to the scientific treatment. This is a cardinal error. When the patient weeps inconsolably, the whole emphasis should be to trace the root cause, not merely to administer a perfunctory dose guaranteeing a provisional calm. The Anthony Hopkins starrer 'Father' underlined this aspect beautifully.

We need to create purposeful awareness among relatives and care givers of dementia patients, to help them:

1. Raise the right probing questions rather than seek tailor-made answers,

2. Explode the myriad myths and misconceptions surrounding the disease,

3. Break the shackles of cerebral communication to strike a chord with the patient.

This selfless effort is certainly not the proverbial magic pill, but it’s undoubtedly critical to put medication in perspective.